Indigent Health Care - Milwaukee
spinal myelopathy: a case study

Current Symptoms Journal
Vincent J Cataldi -- Milwaukee, Wisconsin 53202 - USA
 

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I collect my daily symptoms into a relational database to better understand what is happening.  Most importantly, I am searching for indications that things are stable of worsening.  I am searching for a new global minimum, as opposed to a local minimum, which occurs routinely during the cyclical symptomatic occultation.

This process requires an attempt to objectify a subjective symptom.  Relative numbness is tested by putting feet into very hot water to determine which foot feels the heat and pain more.  Also, I try to access a numeric degree to reach symptom record, relative to yesterday, so that the relative meaningfulness of the data is useful.  Also, the database quickly evolved during the first month and so the earliest data is less reliable than the most recent data.

Medication is another obvious obstacle to objectify such subjective symptomatic feelings and observations.  I do a self-exam before any drugs, and wait as long as I can tolerate before pain medication.  Nearly all observations are before any medication.

I describe the symptoms first with a part or activity, then left or right side, top or bottom, and front or back. Each record also allows a numeric value for degree, I use very good at zero -- by 9,  I suspect I would be fighting pain for consciousness.

Current Symptoms - Baseline and Definitions


 
Vincent Cataldi - Daily Medical Symptoms

Monday, March 22, 2004

X Y Z deg Condition

Monday, March 22, 2004

_Activity N/A N/A N/A 0

House bound - computer work only as much as possible

_Comment N/A N/A N/A 0

_Consciousness N/A N/A N/A 0

alert, calm, sad

_Dizzy N/A N/A N/A 0

couple of day here and there

_Eating N/A N/A N/A 0

eating very poorly since new year - some days nothing, I forget

_Meds N/A N/A N/A 0

1 month supply lasted 2+ months, ran out about the 10th

_Nausea N/A N/A N/A 0

cronic; I feel it is correlated with pain.

_Overall N/A N/A N/A 0

exhausted, time to regroup, take care of very bad toe, find doctor, finish taxes to finish federal disability formalities, get meds

_Sleep N/A N/A N/A 0

perhaps 6 per day for last month

_Walking N/A N/A N/A 0

house bound - none

Finger 3 N/A N/A N/A 4

small but deep and ugly - I feared to look yesterday

Foot Left All N/A 5
burns

Friday, February 20, 2004

head N/A N/A N/A 0
Normal

left noise full of blood - yet none on pillow or sheets or face. Could not breath

Wednesday, February 18, 2004

head Left Upper Front 3
ache

Saturday, February 07, 2004

Heal Center Bottom Back 4
open Wounds

Found circular hole about 2 inches across

Toe 2 Center Bottom Back 4
open Wounds

found old wound

Tuesday, February 03, 2004

Body Right All Outer 7
shooting pain

Very hot pain shooting from right hip to right ankle, and then up the torso and down the arm to the right wrist. It is the fourth time

this has happened, each time while sitting. Muscles instantly cramp up at the right shoulder and quickly becomes worse. I stop it

by straighten the leg, and standing with support as soon as I can. After it happens I work to lay down and relax.

Sunday, February 01, 2004

_Dizzy N/A N/A N/A 3
dis-coordinated

walking must be slow and deliberate, but I can not balance walking if I turn my head. This is somewhat normal these days, but

more at a level .5 - 1.

_Nausea N/A N/A N/A 3
Nausea

near but not quite vomit level

_Vision N/A N/A N/A 0
double vision

double vision in each eye individually, second time.

Ankle Left Center Outer 3
sharp pain

This seems to begin at heal up to back of knee, and for the first time slightly to left wrist in the hand; all outside and back.

Foot Left Upper Tip 3
burn-numb

Mostly a 1 and 1,5 but possible infection, or continuing problem near toenail.

Foot Right N/A N/A 1
itchy

Much better and warmer too.

Hand Left Bottom Outer 2
sharp pain

This seems to begin at heal up to back of knee, and for the first time slightly to left wrist in the hand; all outside and back.

knee Left N/A Outer 6
sharp pain

This is outrageous but not constant. (pressure at heal, sitting posture, or heat?) This seems to begin at heal up to back of knee,

and for the first time slightly to left wrist in the hand; all outside and back.

Toe 3 Left Top Tip 2
open Wounds

getting better

Torso Left Both Center 5
external pain w heat

hurts to breath and walk

Saturday, January 31, 2004

_Comment N/A N/A N/A 0
Normal

??? I have been house bound for several weeks for the most part and have nothing to drink but coffee. How is fluid intake effect

the circulation problems in toes????

_Walking N/A N/A N/A 4
in-voluntary response

bounced from wall to wall going the building hallway. Left leg was un-cooperative and motion was jerky and very thoughtful. Still

balance was too poor to cross the road.

Toe 3 Left N/A N/A 2
open Wounds

getting better, under and tip are looking very good, dark with dead skin looks messy near nail - outside.

Friday, January 30, 2004

_Activity N/A N/A N/A 0
Normal

worked at computer for 12 hours, longest possible in a year perhaps.

_Vision N/A N/A N/A 3
blurred

Arm Both All N/A 3
numb

from armpit to finger tips increasingly toward extremes. Weak, tingling,

Hand Both N/A N/A 4
tight - clenched

less numb than normal but uniformly tight throughout the hand, and both hands are equal; both of these facts are not normal but

not a first time.

Neck Center Center Back 0
crackles - nosy

seems to go with itchy also

Toe 1 Right Top Center 2
discolored - dark

The burse re-appeared and is dark again.

Toe 2 Right N/A N/A 0
discolored - dark

is pink and warm

Toe 3 Left N/A N/A 2
open Wounds

getting better

Torso Right Center All 4
external pain

Thursday, January 29, 2004

_Sleep N/A N/A N/A 0
N/A

slept 24 hours today - Spent last 4 days soaking to save toe 3 on Left foot. Seems to have worked.

_Vision N/A N/A N/A 0
normal - OK

wonderful

Toe 2 Left N/A N/A 0
normal - OK

beautiful - pink, pain free, not numb

Toe 3 Left N/A N/A 3
open Wounds

tip scabby, toe nail appears to be dead and will like fall off soon.

Tuesday, January 27, 2004

Toe 2 Left Top Tip 2
discolored - purple

outer 1/3

Toe 3 Left Top Tip 5

swollen, numb, nearly purple. Hurts externally because it is raw and exposed, but not cramped numb type pain.

Toe 3 Right Top Tip 2
discolored - dark

almost purple

Sunday, January 25, 2004

_Sleep N/A N/A N/A 0
Little if any

nursing left foot (toe 3) to prevent an escalating situation. Also took an extra Pletal and aspirin.

Finger 1 Right All N/A 3
tight - clenched

troublesome but not painful

Finger 2 Right All N/A 2
tight - clenched

troublesome but not painful

Hand Left All N/A 3
discolored - dark

Much darker then other hand.

Hand Right N/A N/A 0
Normal

Normally the hands are the same.

head Left Top Front 5
sharp pain

Periodic sharp pain above and left of left eye. This is most unusual (first I can remember in years. This disappeared and chest

started to hurt (never both).

Heal Right Bottom N/A 4
super-sensitive

can shoot a pain up to back of knee, and on to back of hips (waist)

Knee Left Center Back 5
shooting pain

occasionally only, seems more likely when hot soaking the foot.

Toe 1 Right Tip Center 0
discolored - purple

blood blister pealed away with dark color (+_ 2 weeks old)

Toe 2 Left Tip Outer 2
discolored - purple

Toe 3 Left Top Tip 3
open Wounds

lost skin at toe tip. Shallow but large area, nail may come off too. Soaking with hot salty water 6 hours daily.

Saturday, January 24, 2004

_Sleep N/A N/A N/A 0
Little if any

Could not sleep for toe pain, so stayed up soaking, heating. Took extra Pletal

Chest Left Top Outer 2
sharp pain

Foot Left Lower Tip 4
burn-numb

head Left Top Front 3
sharp pain

Periodic sharp pain above and left of left eye. This is most unusual (first I can remember in years. This disappeared and chest

Toe 3 Left Top Tip 5
discolored - purple

upper half, toward inside. Tip may die as a blood blister. Soaking with hot water.

Friday, January 23, 2004

_Sleep N/A N/A N/A Little if any

chest pain caused no sleep. Movement and breathing was awful.

Chest Left Top Outer 5
sharp pain

head Left Top Front 4
sharp pain

Periodic sharp pain above and left of left eye. This is most unusual (first I can remember in years. This disappeared and chest

started to hurt (never both).

Thursday, January 22, 2004

_Activity N/A N/A N/A 0
Normal

Hallidays 1.5 hours

_Comment N/A N/A N/A 0
Normal

Cold like symptoms, sneezing, runny nose, head ach.

_Sleep N/A N/A N/A 0
Normal

had to soak feet

Foot Both N/A N/A 3
discolored - dark

Left worse than right X 2.

head Left Top Front 4
sharp pain

Periodic sharp pain above and left of left eye. This is most unusual (first I can remember in years.

Knee Left N/A N/A 6
Normal

Periodic shooting pain behind and outside - normally when sitting (and or soaking) Forces leg to straighten.

Toes - all Left N/A N/A 5
discolored - purple

Swollen, ugly, required hot soaking all night. Too painful for sleep.

Wednesday, January 21, 2004

_Activity N/A N/A N/A 0
Normal

Sandy doctor appointment - 103 & Okalahoma

_Walking N/A N/A N/A 5
Normal

doable but near limit of unassisted walking.

Foot Left Bottom N/A 6
super-sensitive

Bottom of foot, more so at heal.

Leg Lower Left N/A Back 6
shooting pain

Limit of walking unassisted for the pain.

Toe 3 Left Both Tip 0
discolored - purple

swollen too, remains larger and darker after hours of hot soaking, unusual. Also a dark spot as a burse at center joint, top.

Tuesday, January 20, 2004

_Nausea N/A N/A N/A 0
Normal

sneezing unstopped, runny noise, cold like symptoms

Leg Left Both Outer 6
shooting pain

an escalating tension induced hip to ankle piercing hot and tingly

Shoulder Both Upper Back 2
tight - clenched

these muscled cramped toward a Charlie hosed type cramp. , starting a leg pain.

Torso Right Center Outer 6
reverberating tingle external

leg pain escalated to an entire torso involvement, pain actually decreases because it get numb and hot, loose control of leg use. I

controlled the run away escalation be sitting and purposefully trying to extend leg (most affected through out), and trying to relax

all. It is a bit spooky, but not the first time.

Monday, January 19, 2004

_Comment N/A N/A N/A 0
Normal

Back at it

_Nausea N/A N/A N/A 0
Normal

Heal N/A N/A N/A 0
Normal

Leg Left Both Outer 0
shooting pain

Shoulder Both Upper Back 0
tight - clenched

Toes - all Left Top N/A 0
Normal

Torso Right Center Outer 0
reverberating tingle external

Sunday, January 11, 2004

_Activity N/A N/A N/A 0
N/A

Hallidays .75 hours

_Comment N/A N/A N/A 0
Normal

_Meds N/A N/A N/A 0
N/A

Got them - with a 260$ bill

Saturday, January 10, 2004

_Activity N/A N/A N/A 0
Normal

Menlo, from 4 to 7

_Meds N/A N/A N/A 0
Normal

missed it again

Friday, January 09, 2004

_Activity N/A N/A N/A 0
Normal

saw Dr W for med scripts

_Meds N/A N/A N/A 0
Normal

brought script in but they closed early

Thursday, January 08, 2004

_Comment N/A N/A N/A 0
Normal

Since December 23 I have not had any pain medication, nor anything except off-the shelf aids. There for the data from here back

to 12-23 is not meaningful or even reordered except visible damage or first time or rare events.

Saturday, January 03, 2004

_Vision N/A N/A N/A 0
dancing lights

with eyes closed in dark - never before noticed

Monday, December 29, 2003

_Overall N/A N/A N/A 0
reverberating tingle external

Saturday, December 27, 2003

Toe 1 Right Top Tip 0
discolored - purple

Tuesday, December 23, 2003

_Consciousness N/A N/A N/A 0
groggy

_Vision N/A N/A N/A 0
blurred

Foot N/A N/A N/A 0
good

Monday, December 22, 2003

_Sleep N/A N/A N/A 0
Normal

hip pain wakes me

Hips Left N/A N/A 4
sharp pain

hip is painful occasionally, buckles under and I fall

Sunday, December 21, 2003

Hips N/A N/A N/A 6
buckles

6could not walk, hip osculates and fails completely

Saturday, December 20, 2003

Foot Both N/A N/A 5
discolored - dark

Heal Left Both Back 6
sharp pain

Leg Lower N/A N/A Back 6
shooting pain

Torso Left Lower Back 5
external pain w heat

Friday, December 19, 2003

_Activity N/A N/A N/A 0

TommyT Letter

_Comment N/A N/A N/A 0
good

Feel very good

_Consciousness N/A N/A N/A 4
reverberating tingle external

tingle about head and torso

_Meds N/A N/A N/A 0

missed while sleeping

_Sleep N/A N/A N/A 0

20 hrs

Foot Both N/A N/A 1

itchy, good color

Thursday, December 18, 2003

_Activity N/A N/A N/A 0
Normal

Madison w pop

_Comment N/A N/A N/A 0
Normal

good - plus an active day too. Unusual

_Meds N/A N/A N/A 0
Normal

full and early - no more Bextra

_Walking N/A N/A N/A 0
Normal

best in months - pain 3, limp 2

Neck N/A N/A N/A 0
mobility - increased

I can see my belt buckle and pants button - first time in 2 years

Torso N/A N/A N/A 2
external pain w heat

much better overall

Wednesday, December 17, 2003

_Activity N/A N/A N/A 0
Normal

TommyT Letter 40 hrs in last 4 previous days - every moment.

_Comment N/A N/A N/A 0
Normal

good

_Consciousness N/A N/A N/A 3
groggy

_Eating N/A N/A N/A 0
Normal

virtually none

_Meds N/A N/A N/A 0
N/A

none - forgot and working too hard on TommyT letter

_Nausea N/A N/A N/A 5
N/A

_Overall N/A N/A N/A 5
reverberating tingle external

_Vision N/A N/A N/A 3
blurred

Tuesday, December 16, 2003

_Sleep N/A N/A N/A 3

pain - no sleep

Foot Left N/A N/A 0
warm

weird - foot warm, leg cold, very painful, not numb

Foot Left N/A N/A 5
burns

funny bone like pain

Hand Both N/A N/A 0
warm

unusual - clinched, not numb

Leg Lower Left N/A N/A 0
cold

weird - foot warm, leg cold

Toe 3 Left N/A N/A 3
discolored - dark

Toe 3 Right N/A N/A 0
normal - OK

Torso Left N/A N/A 5
hot

external pain and physically hot

Monday, December 15, 2003

_Sleep N/A N/A N/A 0

no sleep, too hot - very unusual

Foot Left N/A N/A 5
discolored - dark

right hand warm, left icy cold

Hand Left N/A N/A 4
cold

right foot warm

Leg Right N/A N/A 3
involuntary movement

Toe 3 Right N/A N/A 0
itchy

no numbness

Torso N/A N/A N/A 3
hot

externally painful, physically hot

Sunday, December 14, 2003

Arm Left N/A N/A 4
external pain

lower arm is numb and slightly painful, upper very painful externally

Arm upper Right N/A N/A 3
tingle

unusual

Foot Both N/A N/A 4
discolored - dark

very dark - not quite purple - needs very close attention and hot soaking

Hand Both N/A N/A 4
tight - clenched

icy cold, numb - right more than left, inner more than outer

Torso Left Upper N/A 6
external pain

high and low, center to center

Saturday, December 13, 2003

_Comment N/A N/A N/A 0
weak

Leg Left N/A N/A 5
involuntary movement

Leg Lower Left N/A N/A 6
shooting pain

Friday, December 12, 2003

_Dizzy N/A N/A N/A 4

_Nausea N/A N/A N/A 4
tingle

Chest Left Upper Outer 5
external pain

Foot Left N/A N/A 5
burn-numb

Heal Left N/A N/A 6
sharp pain

Neck N/A Upper Back 2
tingle

Toe 3 Right N/A N/A 3
burns

Toe 3 Right Bottom Tip 4
open Wounds

Torso Left Upper Front 5
external pain

Thursday, December 11, 2003

_Activity N/A N/A N/A 0

SS Disability Form - Madison

_Nausea N/A N/A N/A 5

_Vision N/A N/A N/A 3
blurred

Arm lower Left N/A N/A 0
external pain

Hand Both N/A N/A 3
tight - clenched

Wednesday, December 10, 2003

Arm Left Upper Outer 3
tingle

and numb

Chest Left Upper Front 5
sharp pain

takes your breath away when ribs move - funny bone like pain

Foot Both N/A N/A 3
discolored - dark

left darkest but close

Foot Left All N/A 5
sharp pain

7 when walking

head Both N/A N/A 1
discolored - dark

left darkest but close

Hips Left Upper Front 5
sharp pain

Knee Left Center Back 5
shooting pain

7 during spasms when sitting, outside back, hot pain

Toe 3 Right Bottom Tip 3
open Wounds

watching closely - not improving

Toe 3 Right Top Tip 4
discolored - purple

Toes - all Left Both Outer 0
sharp pain

outer and tips the worst

Tuesday, December 09, 2003

Foot Both N/A N/A 3
discolored - dark

Hand Both N/A N/A 3
discolored - dark

Toe 3 Right Top Tip 2
discolored - purple

Toe 3 Right Bottom Tip 4
open Wounds

Monday, December 08, 2003

_Activity N/A N/A N/A 0
Normal

hot salt soaking

_Comment N/A N/A N/A 0
Normal

sort for time added to allow changes per day

Back N/A Center N/A 5
shooting pain

momentary - center, middle, at spine - new pain

Foot Left Bottom N/A 4
sharp pain

super sensitive to the touch or walking

Foot Left Bottom All 8
shooting pain

later: horrible spasm from foot to low left center stomach through the outer left leg

Toe 3 Left Top Tip 1
discolored - purple

Toe 3 Left Bottom Tip 3
open Wounds

Sunday, December 07, 2003

_Activity N/A N/A N/A 0

Menlo

_Comment N/A N/A N/A 0

feet color good, itching too

_Meds N/A N/A N/A 0

1/2 to ration

_Sleep N/A N/A N/A 0

14 hours

_Vision N/A N/A N/A 1
blurred

Foot Left Bottom Back 0
burns

super sensitive heal and arch

Saturday, December 06, 2003

_Activity N/A N/A N/A 0

couch work, soaking feet

_Dizzy N/A N/A N/A 0
Numb Tingly Halo

head and left outer center side

_Nausea N/A N/A N/A 0
Normal

unusual - sick after eating, usually eating helps.

_Overall N/A N/A N/A 0

walking brings tears, heal and wobbly legs

_Sleep N/A N/A N/A 0
Normal

17 hours

head N/A N/A N/A 4
reverberating tingle external

high frequency external numbness and too groggy conciseness

Heal Left Bottom Back 6
shooting pain

barely able to walk with meds

Shoulder Both Top Back 4
ache

muscle exhaustion

Friday, December 05, 2003

_Comment N/A N/A N/A 0

hands and feet both dark, left side more

_Walking N/A N/A N/A 1
stumble prone

pain and control difficult, upper rear L Leg

Arm lower Both N/A N/A 2
non-voluntary response

Foot Left N/A N/A 5
numb & burn

Foot Right N/A N/A 3
burn-numb

Hand Both N/A N/A 4
dis-coordinated

Heal Left Bottom Inner 4
shooting pain

Hips Left N/A N/A 3
buckles

osculates and collapses

Leg Lower Left Lower Back 2
burn-numb

Leg Upper Left Center Back 3
non-voluntary response

Toe 3 Right Bottom N/A 2
open Wounds

getting smaller with soaking

Toe 3 Right Top N/A 3
discolored - purple

Thursday, December 04, 2003

_Comment N/A N/A N/A 0

Lower areas mostly

_Dizzy N/A N/A N/A 1
normal - OK

much better

_Vision N/A N/A N/A 0
normal - OK

_Walking N/A N/A N/A 1
stumble prone

pain and control difficult

Arm lower Both N/A N/A 3
non-voluntary response

Foot Left N/A N/A 5
numb & burn

Foot Right N/A N/A 3
burn-numb

Hips Left N/A N/A 3
buckles

osculates and collapses

Leg Upper Left N/A N/A 3
non-voluntary response

Toe 3 Right Top N/A 5
discolored - purple

purple and ugly - above and below

Toe 3 Right Bottom N/A 3
open Wounds

slowly getting larger

Wednesday, December 03, 2003

_Activity N/A N/A N/A 0
Normal

hot salt water soaking

_Comment N/A N/A N/A 0

better over all

_Dizzy N/A N/A N/A 1

much better

_Vision N/A N/A N/A 1

good

_Walking N/A N/A N/A 1

stable and little pain

Foot Left N/A N/A 5
numb & burn

Foot Right N/A N/A 3
burn-numb

Hips Left N/A N/A 3
Internal pain

Toe 3 Right Top N/A 5
discolored - purple

purple and ugly - above and below

Toe 3 Right Bottom N/A 3
open Wounds

slowly getting larger

Tuesday, December 02, 2003

_Dizzy N/A N/A N/A 3
dizzy

_Nausea N/A N/A N/A 3
N/A

_Vision N/A N/A N/A 4
blurred

Foot Both N/A N/A 3
discolored - purple

Hand N/A N/A N/A 0
warm

Hand N/A N/A N/A 4
cold

Toe 3 Right Bottom Outer 3
open Wounds

Toe 3 Right Top Outer 4
discolored - purple

Toes - all Both N/A N/A 4
discolored - dark

Monday, December 01, 2003

_Dizzy N/A N/A N/A 3
tingle

_Walking N/A N/A N/A 3
stumble prone

Friday, December 05, 2003

_Comment N/A N/A N/A 0

hands and feet both dark, left side more

_Walking N/A N/A N/A 1
stumble prone

pain and control difficult, upper rear L Leg

Arm lower Both N/A N/A 2
non-voluntary response

Foot Left N/A N/A 5
numb & burn

Foot Right N/A N/A 3
burn-numb

Hand Both N/A N/A 4
dis-coordinated

Heal Left Bottom Inner 4
shooting pain

Hips Left N/A N/A 3
buckles

osculates and collapses

Leg Lower Left Lower Back 2
burn-numb

Leg Upper Left Center Back 3
non-voluntary response

Toe 3 Right Bottom N/A 2
open Wounds

getting smaller with soaking

Toe 3 Right Top N/A 3
discolored - purple

Thursday, December 04, 2003

_Comment N/A N/A N/A 0

Lower areas mostly

_Dizzy N/A N/A N/A 1
normal - OK

much better

_Vision N/A N/A N/A 0
normal - OK

_Walking N/A N/A N/A 1
stumble prone

pain and control difficult

Arm lower Both N/A N/A 3
non-voluntary response

Foot Left N/A N/A 5
numb & burn

Foot Right N/A N/A 3
burn-numb

Hips Left N/A N/A 3
buckles

osculates and collapses

Leg Upper Left N/A N/A 3
non-voluntary response

Toe 3 Right Top N/A 5
discolored - purple

purple and ugly - above and below

Toe 3 Right Bottom N/A 3
open Wounds

slowly getting larger

Wednesday, December 03, 2003

_Activity N/A N/A N/A 0
Normal

hot salt water soaking

_Comment N/A N/A N/A 0

better over all

_Dizzy N/A N/A N/A 1

much better

_Vision N/A N/A N/A 1

good

_Walking N/A N/A N/A 1

stable and little pain

Foot Left N/A N/A 5
numb & burn

Foot Right N/A N/A 3
burn-numb

Hips Left N/A N/A 3
Internal pain

Toe 3 Right Top N/A 5
discolored - purple

purple and ugly - above and below

Toe 3 Right Bottom N/A 3
open Wounds

slowly getting larger

Tuesday, December 02, 2003

_Dizzy N/A N/A N/A 3
dizzy

_Nausea N/A N/A N/A 3
N/A

_Vision N/A N/A N/A 4
blurred

Foot Both N/A N/A 3
discolored - purple

Hand N/A N/A N/A 0
warm

Hand N/A N/A N/A 4
cold

Toe 3 Right Bottom Outer 3
open Wounds

Toe 3 Right Top Outer 4
discolored - purple

Toes - all Both N/A N/A 4
discolored - dark

Monday, December 01, 2003

_Dizzy N/A N/A N/A 3
tingle

_Walking N/A N/A N/A 3
stumble prone

Foot Left N/A N/A 2
Internal pain

Foot Left All N/A 5
burns

Toe 3 Right Top Outer 3
discolored - purple

Toe 3 Right Bottom Outer 2
open Wounds

Sunday, November 30, 2003

_Comment N/A N/A N/A 6
groggy

_Dizzy N/A N/A N/A 6
Numb Tingly Halo

_Vision N/A N/A N/A 5
blurred

Hand Left N/A N/A 4
cold

Hand Right N/A N/A 1
warm

Heal Left N/A N/A 4
burns

Saturday, November 29, 2003

_Comment N/A N/A N/A 5
groggy

_Dizzy N/A N/A N/A 5
Numb Tingly Halo

_Vision N/A N/A N/A 4
blurred

_Walking N/A N/A N/A 4
stumble prone

Arm upper Left N/A N/A 5
external pain

Torso N/A N/A N/A 6
external pain

Friday, November 28, 2003

_Activity N/A N/A N/A 0
Normal

sleep

Thursday, November 27, 2003

_Activity N/A N/A N/A 0
Normal

Madison

_Dizzy N/A N/A N/A 4
Normal

_Meds N/A N/A N/A 0
Normal

full (2) normally 1

_Vision N/A N/A N/A 3
blurred

_Walking N/A N/A N/A 4
stumble prone

Wednesday, November 26,

_Activity N/A N/A N/A 0
Normal

rested for Thanksgiving

_Comment N/A N/A N/A 0
Normal

Feet hurt - not numb - vision blurred

_Dizzy N/A N/A N/A 5
Normal

_Vision N/A N/A N/A 4
blurred

_Walking N/A N/A N/A 5
stumble prone

Arm Left N/A N/A 3
external pain

below elbow for the first time, upper arm slightly more sensitive

Arm upper Left N/A N/A 4
external pain

Tuesday, November 25, 2003

Arm upper Left N/A N/A 4
external pain

Monday, November 24, 2003

_Comment N/A N/A N/A 0

switch to upper problems

_Dizzy N/A N/A N/A 5

_Vision N/A N/A N/A 3
blurred

_Walking N/A N/A N/A 4
stumble prone

Foot Both N/A N/A 0

not numb but painful

Hand Left N/A N/A 0
dis-coordinated

Hand Right N/A N/A 0
tight - clenched

Leg Left N/A N/A 5
sharp pain

icy cold too

Torso Left N/A N/A 5
external pain

Lower center at hip

Friday, November 21, 2003

_Comment N/A N/A N/A 0
Normal

It may be that after 'activity' I sleep so much the I don't take meds enough

_Meds N/A N/A N/A 0
Normal

taken early for the pain - reverberations

_Sleep N/A N/A N/A 0
Normal

14 Hours

Arm Left N/A N/A 0
numb

unusual

Hand Right N/A N/A 0
warm

clenched, red and warm

head Left N/A N/A 0
cold

clenched red and cold

Toe 3 Right N/A N/A 4
open Wounds

Torso Right Center N/A 3
external pain

more front than side, upper and lower, heat too

Thursday, November 20, 2003

_Activity N/A N/A N/A 0

slept 38 hours in last two days; hot water soaking of feet

_Comment N/A N/A N/A 0
Normal

hands, ears, nose are warm; healing

_Dizzy N/A N/A N/A 0

when ever I move - more when standing

_Nausea N/A N/A N/A 6
Normal

awful

_Overall N/A N/A N/A 0

depressed

Foot N/A N/A N/A 3
cold

painful - not numb

Foot N/A N/A N/A 4
cold

painful - not numb

Leg N/A N/A N/A 0

walking is wobbly

Toe 3 Right Bottom Outer 3
open Wounds

wound under toe healing, purple on top nearly gone

Torso Right Center N/A 2
external pain

more front than side

Wednesday, November 19,

_Sleep N/A N/A N/A 0
Normal

slept as soon as I got home

Toe 3 Right Both N/A 3
open Wounds

below wound is nearly dime size, top is purple

Tuesday, November 18, 2003

_Activity N/A N/A N/A 0

Microsoft symposium in Racine 1-5

_Dizzy N/A N/A N/A 1

_Nausea N/A N/A N/A 1
Normal

_Overall N/A N/A N/A 2

quite good at start, exhausted by evening

Arm upper N/A N/A N/A 4
external pain

Monday, November 17, 2003

_Activity N/A N/A N/A 0
Normal

printed SBA Disability pages, and slept

_Comment N/A N/A N/A 0
Normal

prepared for tomorrow

Sunday, November 16, 2003

_Activity N/A N/A N/A 0

menlo

_Dizzy N/A N/A N/A 4
tingle

_Nausea N/A N/A N/A 2
Normal

_Overall N/A N/A N/A 3
groggy

dull

_Walking N/A N/A N/A 4
Normal

bothered most by toe 3 L.

Arm upper Left N/A Back 1
external pain

body Left All Outer 2
Numb Tingly Halo

stepping reverberates to head

Foot Left N/A N/A 3
discolored - dark

outer toes hurt - not too numb

Foot Right N/A N/A 2
discolored - dark

less dark than left except toe 3 Right

head All N/A N/A 4
Numb Tingly Halo

usually with nexuses

Leg Left N/A N/A 3
burn-numb

worst at hip

Toe 2 Left Center Outer 2
discolored - purple

very small - unusual, toe 2 L hurts more

Toe 3 Right Top Outer 4
open Wounds

top same. Small wound under toe in normal position

Torso Left Lower Center 3
external pain

Saturday, November 15, 2003

_Dizzy N/A N/A N/A 4
tingle

_Nausea N/A N/A N/A 4
Normal

_Overall N/A N/A N/A 0
stumble prone

Arm upper Left N/A Back 6
external pain

body Left All Outer 3
Numb Tingly Halo

Foot Left N/A N/A 3
discolored - dark

Foot Right N/A N/A 2
discolored - dark

head All N/A N/A 4
Numb Tingly Halo

Leg Left N/A N/A 5
burn-numb

Shoulder Both Center Back 2
tight - clenched

Toe 3 Right Top Outer 3
discolored - purple

Torso Left Lower Center 6
external pain

Friday, November 14, 2003

_Activity N/A N/A N/A 0
Normal

soak feet, hair cut, suit, shop.

_Overall N/A N/A N/A 2

quite good

_Walking N/A N/A N/A 2

Foot Left N/A N/A 4
burn-numb

Foot Right N/A N/A 3
burn-numb

Hand Left Upper N/A 2
tight - clenched

outer half , more inner (f1-3) - warm

Hand Right N/A Inner 5
tight - clenched

fingers 1-3 cold

Leg Left Center Back 4
cold

Leg Lower Right Center Back 3
cold

Neck Left N/A N/A 2
itchy

- normally on right

Toe 3 Right Top N/A 4
discolored - purple

on the top, tip to center; pain under at tip

Torso Left Lower Front 5
external pain

from navel left and down

Thursday, November 13, 2003

_Walking N/A N/A N/A 2
good

Foot Left N/A N/A 5
burns

Foot Right N/A N/A 4
burns

Hand Both N/A N/A 3
cold

Leg Left Center Back 6
cold

Leg Right Center Back 5
cold

Toe 3 Right N/A N/A 5
discolored - dark

Wednesday, November 12,

_Activity N/A N/A N/A 0
Normal

ssd interview

_Overall N/A N/A N/A 3

_Sleep N/A N/A N/A 0
Normal

12 hrs

_Walking N/A N/A N/A 4

Heal Left Bottom Center 4
sharp pain

Leg Both Lower N/A 4
cold

Toes - all Left Lower Front 5
external pain

Torso N/A N/A N/A 5

more toward stomach

Tuesday, November 11, 2003

_Activity N/A N/A N/A 0
Normal

Froedert Hospital - passed on scan

_Overall N/A N/A N/A 0
Normal

_Walking N/A N/A N/A 2
Normal

quite easy

Hand Both N/A N/A 0
warm

Monday, November 10, 2003

_Walking N/A N/A N/A 0
stumble prone

Hand Right N/A N/A 0
warm

Heal Left N/A N/A 0
cold

Sunday, November 09, 2003

_Activity N/A N/A N/A 0
Normal

menlo

_Vision N/A N/A N/A 2
better

Hand Both N/A N/A 0
cold

Saturday, November 08, 2003

_Vision N/A N/A N/A 4
better

Heal Right Top N/A 0
sharp pain

Thursday, November 06, 2003

Shoulder Both N/A Back 0
tight - clenched

Wednesday, November 05,

_Activity N/A N/A N/A 0
Normal

Dr w - meds refills

Leg Right N/A N/A 0
Internal pain

Tuesday, November 04, 2003

_Comment N/A N/A N/A 0
Normal

flue shot

_Dizzy Right Upper N/A 0
Normal

comment

_Walking N/A N/A N/A 0
Normal

better

Monday, November 03, 2003

_Activity N/A N/A N/A 0

sleep

_Comment Left Upper N/A 4

foot color better than hands, left hand cold, right hand warm

_Dizzy N/A N/A N/A 5

_Nausea N/A N/A N/A 4

_Overall Left Upper N/A 0

right good, lower good

_Walking Left N/A N/A 4

painful, left hip buckled

Heal N/A N/A N/A 0
burns

Neck N/A N/A N/A 0

Toes - all N/A N/A N/A 0
sharp pain

but not numb

Torso N/A N/A N/A 6
sharp pain

Saturday, November 01, 2003

_Activity N/A N/A N/A 0

none, slept 20 hours

_Comment N/A N/A N/A 0

awful, dizzy

_Dizzy N/A N/A N/A 6

when walking or standing

_Nausea N/A N/A N/A 6

_Overall N/A Upper N/A 0

upper

_Walking N/A N/A N/A 0

tingle reverberations in head

Butt Right N/A N/A 0
sharp pain

Finger 1 Right N/A N/A 0
tight - clenched

Finger 2 Right N/A N/A 0
tight - clenched

Hand N/A N/A N/A 5
tingle

Leg Upper Left N/A N/A 0
cold

Neck N/A N/A N/A 6
itchy

very itchy

Toes - all N/A N/A N/A 0

numbness gone - itch and hurt

Torso Left N/A N/A 6
Internal pain

chest area more then low and back

Friday, October 31, 2003

_Activity N/A N/A N/A 0
Normal

_Activity N/A N/A N/A 0
Normal

_Meds N/A N/A N/A 0
small meds

Foot Left Top Center 4
Internal pain

Hand Right Inner 4
tight - clenched

Toes - all Both N/A N/A 4
ache

Torso N/A N/A N/A 0

Thursday, October 30, 2003

_Activity N/A N/A N/A 0
Normal

went to menlo -

_Walking left N/A N/A 4
stumble prone

Leg Lower Both Center Back 2
cold

rare on right side

Neck Center Center Back 2
itchy

Toe 1 Left Lower Center 2
open Wounds

Toe 1 Right Lower Center 0
open Wounds

Torso Left All Outer 6
external pain

Wednesday, October 29, 2003

Hand Left Lower Inner 3
tight - clenched

Hand Right N/A Inner 4
tight - clenched

Leg Lower Right All Back 2
cold

Neck Center Center Back 2
itchy

Toe 1 Left Lower Center 4
open Wounds

Toe 1 Right Lower Center 3
open Wounds

Torso Left All Outer 4
external pain

Tuesday, October 28, 2003

_Sleep N/A N/A N/A 0

pain interrupted sleep - feet and legs

_Walking N/A N/A N/A 6
stumble prone

Finger 1 N/A N/A N/A 0

Finger 1 N/A N/A N/A 0

Leg Upper N/A N/A N/A 0

Neck N/A Center Back 0

Torso Left Both Outer 6
external pain

hurt to breath when ribs move

Monday, October 27, 2003

_Overall left Lower N/A 0

_Overall left Lower N/A 0

Sunday, October 26, 2003

_Walking left N/A N/A 4
stumble prone

Foot Left N/A N/A 0

Foot Right N/A N/A 0

Hand Left Lower Inner 3
numb

Hand Right N/A N/A 4

Leg Lower Right All Back 2
cold

Neck Center Center Back 2
itchy

Toe 1 Left Lower Center 2
open Wounds

Toe 1 Right Lower Center 1
open Wounds

Torso Left All Outer 6
external pain

Saturday, October 25, 2003

Foot Left Upper Center 0
Normal

toes and op - not arch

Leg Lower Left All N/A 3
numb & burn

Torso N/A N/A N/A 0

Friday, October 24, 2003

_Comment N/A N/A N/A 0

v tight mussels across back - shoulder to shoulder

_Overall left Lower N/A 0

awful - hurt to move, icy cold. Right side started to spasm with sharp shooting hot pains from shoulder to foot.

_Sitting N/A N/A N/A 3

seems to aggravate feet and upper back fatigue

_Walking left N/A N/A 4
stumble prone

Foot Left N/A N/A 0

arch and top

Foot Right N/A N/A 0

good

Hand Left Lower Inner 3
numb

Leg Right Outer Center 6
shooting pain

first time since Jan or Dec.

Leg Lower Right All Back 2
cold

rare on right side

Neck Center Center Back 2
itchy

Shoulder Right Center Back 4
shooting pain

first time

Toe 1 Left Lower Center 4
open Wounds

Toe 1 Right Lower Center 3
open Wounds

Torso Left Lower Front 5
Internal pain

Torso Left All Outer 6
external pain

Thursday, October 23, 2003

_Comment N/A N/A N/A 0

long day yesterday ms convention 8 am to 6 pm

_Overall left Lower N/A 0

tired, wobbly, depressed

_Sleep N/A N/A N/A 0

up 6AM - 6 PM Sleep 6pm to 6am

_Sleep N/A N/A N/A 0

18 hours yesterday up at 5AM. Nap at noon

Butt Left Lower Back 5
burns

Finger 1 Left Upper N/A 3
Internal pain

yesterday is was nearly gone

Finger 3 Right N/A N/A 0
tight - clenched

finger 3 is new, 1 and 2 also

Foot Left All N/A 5
burns

inner arch

Hand Right Upper Back 4
tight - clenched

especially finger 1,2 3

Leg Lower Left outer N/A 4
burns

Torso Left Lower Both 6
burns

lower at front hurts to walk and breath

Wednesday, October 22, 2003

_Overall left Lower N/A 5
good

7 sitting, 3 walking

_Sitting N/A N/A N/A 0

seems to aggravate feet and upper back fatigue

_Walking N/A N/A N/A 0
Normal

Foot Left Top Front 6
numb & burn

tired weak

Leg Lower Right All Back 2
cold

rare on right side

Neck Center Center Back 2
itchy

Toe 1 Left Lower Center 6
open Wounds

Toe 1 Right Lower Center 4
open Wounds

Torso Left All Outer 6
external pain

Tuesday, October 21, 2003

_Comment N/A N/A N/A 4

tired and weak, achy, stiff, sore back

_Overall left Lower N/A 4

tired and weak, achy, stiff, sore back

_Sitting N/A N/A N/A 0

seems to aggravate feet and upper back fatigue

_Sleep N/A N/A N/A 0
Normal

7-12am 2-1:30 7-9

Butt Left N/A N/A 5
numb & burn

hard to sit

Chest Left Both Both 4
external pain

makes breathing painful

Finger 1 Left N/A N/A 0
numb & burn

sharp pain

Finger 1 Left N/A N/A 4
tight - clenched

very painful where nail exits inwardly

Finger 2 Left All Back 3
tight - clenched

Foot Left Top Front 6
numb & burn

tired weak

Leg Left Upper Center 0
shooting pain

hard to walk and sit

Leg Lower Right All Back 2
cold

rare on right side

Neck Center Center Back 2
itchy

Toe 1 Both N/A N/A 1
open Wounds

Toe 1 Left Lower Center 6
open Wounds

Toe 1 Right Lower Center 4
open Wounds

Toe 3 Left Bottom N/A 3
numb & burn

Torso Left All Outer 6
external pain

Monday, October 20, 2003

_Comment N/A N/A N/A 0
Normal

meds at 4

_Overall left Lower N/A 0
Normal

walking wobbly, painful in foot, hip, low torso on L

_Sleep N/A N/A N/A 0
Normal

15 hrs

_Walking N/A N/A N/A 0
Normal

soaking feet in hot salty water, R foot good, L foot deeper and bigger

Sunday, October 19, 2003

_Overall left Lower N/A 5
good

7 sitting, 3 walking

_Sitting N/A N/A N/A 0

seems to aggravate feet and upper back fatigue

Hand Right N/A N/A 0

Leg Lower Right All Back 2
cold

rare on right side

Neck Center Center Back 2
itchy

Toe 1 Left Lower Center 6
open Wounds

Toe 1 Right Lower Center 4
open Wounds

Torso Left All Outer 6
external pain

Friday, October 17, 2003

Finger 1 Right N/A N/A 3
tight - clenched

Finger 2 Right Center N/A 2
tight - clenched

Hips Left N/A Front 5
numb & burn

Wednesday, October 15, 2003

_Comment N/A N/A N/A 0

called Dr. w

_Walking Left Upper Outer 0
dis-coordinated

_Walking N/A N/A N/A 0

stumble, jerky motion on left

Toe 3 Left Lower Outer 0

Tuesday, October 14, 2003

Ankle Left N/A N/A 5
numb & burn

Chest Left Lower Front 4
external Pain

Leg Left Upper Inner 0

Leg N/A N/A N/A 0

Monday, October 13, 2003

_Comment N/A N/A N/A 0

pain low best since seminar feet color good

Sunday, October 12, 2003

Hand Left N/A N/A 0

Torso N/A N/A N/A 0

Friday, October 10, 2003

Toe 1 Right Lower N/A 4
discolored - purple

Toe 3 Right Lower N/A 2
discolored - purple

Thursday, October 09, 2003

Toe 1 Left Lower N/A 4
discolored - purple

Toe 5 Left Lower N/A 5
discolored - purple

Wednesday, October 01, 2003

_Comment N/A N/A N/A 0
Normal

I collect my daily symptoms into a relational database to better understand what is happening. Most importantly, I am searching for

indications that things are stable of worsening. I am searching for a new global minimum, as opposed to a local minimum, which

occurs routinely during the cyclical symptomatic occultation.



This process requires an attempt to objectify a subjective symptom. Relative numbness is tested by putting feet into very hot

water to determine which foot feels the heat and pain more. Also, I try to access a numeric degree to reach symptom record,

relative to yesterday, so that the relative meaningfulness of the data is useful. Also, the database quickly evolved during the first

month and so the earliest data is less reliable than the most recent data.



Medication is another obvious obstacle to objectify such subjective symptomatic feelings and observations. I do a self-exam

before any drugs, and wait as long as I can tolerate before pain medication. Nearly all observations are before any medication.



I describe the symptoms first with a part or activity, then left or right side, top or bottom, and front or back. Each record also

allows a numeric value for degree, I use very good at zero -- by 9, I suspect I would be fighting pain for consciousness.

Medical Status Index