Vincent Cataldi - Milwaukee Wisconsin USA
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Vince,

Your case history was an interesting read and similar to my own. Thanks for sharing it. I really can't advise except that it seems like you already have some damage and it will likely get worse and is irreversible and that your docs suggest surgery so you might as well proceed while you still are in OK shape.

I'm going for an evaluation at the Spine Center at Columbia-Presbyterian in NYC. My thought is to go to the best person I can find and do what they say. Good luck!

Bob

I know that my selection of timing is possibly critical
Thank you sir - vjc


Vince, I had both anterior and posterior decompression surgeries on C1-C4. C1-C3 was performed anteriorly (trans-oral) and Skull to C4 were done posteriorly. I was fused posteriorly Skull to C4. Depending on the source of the stenosis and the amount of relief that can be done anteriorly, I'm guessing that they may have to go in posteriorly for a laminectomy to further increase the canal for the spinal cord to pass. Posterior access to Skull to C4 is mostly above the major muscle layers that you may have heard about in many posters having long recovery after a posterior approach to the lower cervical area. I had 2 posterior surgeries (1 re-do) and recovered fairly quickly...at least the second time.

------------------
3/95 Transoral Odontoidectomy
4/95 Posterior Laminectomy, fusion Occiput-C3 Rib
Halo Brace
Somi Brace

10/95 Posterior Laminectomy Fusion Occiput-C4
Hip and Titanium Prosthesis Occiput-C4 plus wires
11/97 Posterior Laminectomy Fusion L3/L4/L5
Hip and Harrington Rods

Thank you for the vocabulary, thank you for sharing,
the future looks awful, yet as you, 
I will survive to help others.  -   vjc


Welcome to the Spiney family Vince. I'm sure someone with more medical knowledge that I will come along. Glad to have you here. Hugs, Doug

placebo prayer objective study  - vjc


I am confused. Are you a DR? Talking to another DR? Are you asking for help here? Is this on 1-2 people or just you? I guess I am still half asleep, it has confused the heck out of me! Anyone else understand all this?

We here are not MD's, but regular people who have fallen together by "spinal" circumstance. We support each other here. And try to help with the knowledge from our own experiences. To me, yours is complicated beyond anything I could help with. Maybe someone else wants to tackle this. Cindy

------------------
L5/S1 herniation 7mm 01/18/00
Microdiscectomy/Laminectomy 10/12/00
Thoratic pain began Dx buldge @ T-8 08/02
Had MRI on Lumbar because pain was returning, also scanned T spine 8/02, Dx recurrent L5/S1 herniation and new herniation @ level L4/5
Cervical pain began 2/03
Had MRI~Dx herniation @ level C 6/7
Had anterior decompression with hardware and use of my own hip bone graft to C 6/7 8/14/03
Now waiting for neck to heal to get my lumbar fusion...whoo~hoo
Saving all my pennies for trip to Australia to get the ADR!!

Why Australia? - vjc


Vince,

I have to sort of agree.... waaaaay too much info here for us. None of us are doctors, and I doubt any of us are very good at reading MRI reports, etc. That said, I noticed that the MRI was done in January, and it's now October and you have not had surgery, despite four doc telling you you needed it. I did not notice that stenosis was involved (maybe it was and I missed it?).... and the most important omission is what your actual symptoms are. So how do you feel?

If you do not have a real problem with the quality of your life/lifestyle, and if the docs are not telling you that you need to have surgery before you risk permanent nerve damage,.... then maybe you have the time to put off having surgery. Or maybe you can opt not to have it unless you get worse, symptomatically. Or maybe you ought to look into some of the minimally invasive techniques offered by a few doctors around the country. A lot of times your body will tell you when it's time to go for it. And of course, there are no guarantees. Good luck. wr


Hi, I noticed something in one of the reports mentioning metastases: ``There are also bony abnormalities of vertebrae of uncertain origin, but the radiologist feels these are suggestive of multiple myeloma. The patient is advised that he needs to see a neurosurgeon in consultation to consider decompressive surgery."

Now, I'm not a doctor and I don't want to alarm you, but that sounds like there is a question about whether you might have cancer - specifically of the bone marrow (myeloma). Perhaps you should ask your doctor about that?

 

03-29-03 good news-day

Friends:  I finally got some test results and it was good considering all. .....

 1. The lab work for proteins 'M' and 'BJ', came back completely normal, as I understand so far.  That likely rules out Multiple Myeloma, about 98% cases, but a small number of victims test negative.  - vjc -03-29-03


Hi Vince... I can understand how confusing all this must be for you. In short if I was you I think I would be inclined to take the Doctors suggestion of an anterior decompression and fusion. I have had an anterior fusion followed about 2 years later by a posterior redo fusion. I got significant pain relief and strength increase from the decompression... BUT aggravated problems at other levels in the neck...

However I consider I am MUCH better off by having had the fusions.

appreciate the comments - vjc
placebo prayer objective study - Copernic Agent


Before that I would strongly consider rolfing, or in my case, I had Lou Gross do structural integration. He lengthens the fascia and that opened up my stenosis. He literally added an inch back to my height.

His web page is ugly, but the results are amazing.
http://www.backfixbodywork.com/

I saw my MRI, the horribly compressed nerves, the loss of nerve signal. He was able to open up the space in my stenosis, and the emj studies showed nerve conduction restored.

Bob sci.med.diseases.osteoporosis

Bob:

I thank you very much for the time, and interesting idea you offer: rolfing. It has been many years since I heard that word, and I don't know much about it, however those that do understand it, say I understand well. I discovered, and then developed a methodology of stretching, which I always believed was a variant of Yoga; I call it the Knot. My primary ambition in life has been to prove it, and then bring it to everyone; I call it Cnotta; the Anglo-Saxon derivation of the word knot. I am currently working with a 3-D reality software to model it.

Although nobody else believes me, I believe in myself and the Knot, and for many years it was the way in which I controlled my pain. Since January I had to stop stretching exercises because I did not want to break my neck at C3-4. I believe the risks potentially were too great and I knew I did not know enough to continue taking such risks.

I will search out the web site as you suggest, and keep my mind open. For your information, you can see my rough ideas on my web site cataldi.us where I describe Cnotta summarily. (../../cataldi.us/Cnotta/default.htm).

Again, please except my sincere thanks and gratitude, I appreciate the time and interest you spent on my behalf.

Sincerely Vince Cataldi



Before I would have fusion I would try structural integration. This lengthens the connective tissues between the spine, often eliminating the need for surgery and preventing pain. It did for me.

See the horrible web page http://www.backfixbodywork.com/ and really read it. Including the testimonials from Olympic athletes. I was saved surgery and much pain. And many other's I know Lou Gross, Mater Structural Integrator (sometimes called rolfing, but he adds a lot of engineering to his work). Insurance will pay tens of thousands of dollars for crippling injury, but a few hours with Lou just might fix the problem.

Finally, fusion surgery is completely obsolete. If you must have surgery, Dheet (IDET?) shrinks discs in a much less invasive manner. Fusion should go the way of the dark ages.

sci.med.diseases.osteoporosis


I'd like to understand some of the terms used about my MRI. What is uncovertebral hypertrophy and hypertrophic facet changes? What does a spondolitic change mean? I'm not sure exactly what the thecal sac is or what its purpose is.... Any help is appreciated, short of trying to understand the internet medical sources. Most don't offer

lay terminology that makes sense.  

Thanks for your input. Peace, Yvette


 
----- Original Message -----
Sent: Monday, October 13, 2003 10:51 AM
Subject: Re: [Neck_Pain] surgery and recovery

I had a bone graft from the bone bank between my C5-C6 two weeks ago. SO far everything is good. I had no pain at the incision area. Did experience  some hoarseness for a few days, and did get flush in my mouth because of he antibiotics ( this is just a reaction to the antibiotics, like having mouth sores on the inside of your mouth). But all in all it was a good experience. Have to wear the cervical collar for the next 6 weeks if I sleep or am in a car. Cannot drive for 6 more weeks. Yes it can become boring if you do not keep yourself busy. All pain was gone when I woke up from the surgery. I could tell that immediately. I do still have a little numbness but am told that will subside in a few weeks.

Good Luck

-------Original Message-------
 
Date: Monday, October 13, 2003 10:20:19
Subject: [Neck_Pain] surgery and recovery
 

After consult with a surgeon, I'll be having an anterior diskectomy (2 level) using harvested bone with plate on C5-6-7. The surgeon indicated the newest processes for fusion (using a cage and injecting a bone growth medium into it) were not available for cervical fusion yet, although they are being used for lumbar with good success rates. The only advantage is that you don't have to endure the discomfort of having bone harvested (usually from the pelvis). The rest of the procedure is the same. The possibility of getting the artificial disk is zero at present in the US. The surgeon felt the studies and time needed to release through the FDA would amount to about 5 years or more. Wish this news were more positive.

 Can anyone advise me about recovery time and the kinds of things to do in advance to prepare for it? I know my throat will be sore from the operation, since they move the trachea, and there is a possibility of being horse for a time. I won't be able to lift anything? for a while. Can I walk, take care of myself, drive? The surgeon I'll be using is saying I won't be in the cervical collar more than a few weeks. True? Travel restrictions? How boring will it get? Medication? Therapy? Being a planner by trade, I want much more information than the doctor gave at the consult. Can anyone walk me through the gory details? Thanks.

The surgeon also mentioned that the people in discussions on the internet tend to be the ones with poor experiences who are still looking for further solutions. He expressed the sentiment that this is less than 5% of all patients. So, if anyone has had a positive outcome and is still pain free after a few years, I'd be grateful to hear from you.



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Vincent J Cataldi -- Milwaukee, Wisconsin 53202 - USA
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